Central Nervous System Vasculitis Foundation does its best to present information that is current, clear and accurate. However, this information should not be construed to be complete or exhaustive. CNSV is something of a mystery, and Medicine's understanding of CNSV is constantly changing and improving. In addition, we at the Central Nervous System Vasculitis Foundation are volunteers who are interested in helping others; we are not medical experts, and Central Nervous System Vasculitis Foundation does not engage in the practice of medicine. In all cases, we recommend that you consult your own physicians regarding any course of treatment or medication.

Regarding our support services, we do not guarantee the reliability or appropriateness of information from other people who might post on our online support services. While many find the information and experiences that we share helpful, they are in no way a substitute for professional medical care.

The information provided by Central Nervous System Vasculitis Foundation is not intended as a substitute for the advice, diagnosis or treatment provided by your own physicians or health care providers and does not take your own individual health situation into account. You should always consult your own health care providers for individual medical advice.

Copyright Status
Most of the information at this site is in the public domain. Unless stated otherwise, documents and files on Central Nervous System Vasculitis Foundation web servers can be freely downloaded and reproduced. The Central Nervous System Vasculitis Foundation, Inc. sponsors most documents on this server; however, you may encounter documents sponsored along with private companies and other organizations. Other parties may retain all rights to publish or reproduce these documents or to allow others to do so. Some documents available from this server may be protected under the U. S. and foreign copyright laws. Permission to reproduce these documents may be required. Only original material owned by the Central Nervous System Vasculitis Foundation, Inc. and copy righted by the Foundation itself will required its permission to be used outside of the internet domain.

Disclaimer of Endorsement
The Central Nervous System Vasculitis Foundation, Inc. does not endorse or recommend any commercial products, processes, or services. The views and opinions of authors expressed on Central Nervous System Vasculitis Foundation, Inc. web sites do not necessarily state or reflect those of the U.S. Government, and they may not be used for advertising or product endorsement purposes.

External Links
Some Central Nervous System Vasculitis Foundation, Inc. sites may provide links to other Internet sites only for the convenience of World Wide Web users. The Central Nervous System Vasculitis Foundation, Inc is not responsible for the availability or content of these external sites. The Central Nervous System Vasculitis Foundation, Inc. does not endorse, warrant or guarantee the products, services or information described or offered at these other Internet sites.

Disclaimer of Liability
For documents available from this server, the U.S. Government does not warrant or assume any legal liability or responsibility for the accuracy, completeness, or usefulness of any information, apparatus, product, or process disclosed.

Privacy

We are committed to respecting your privacy and will protect it when you visit our web site. Any personal information you share with us is shared voluntarily.

You may use The Central Nervous System Vasculitis Foundation, Inc. (CNSVFINC) web site without providing any personal information; however, use of certain support services on the site does require personal information.

With your help, CNSVFINC is committed to ensuring the privacy and accuracy of your personal information. We do not actively share personal information.

CNSVFINC provides this web site as a service to people with CNSV, their families, health care professionals, and others who are seeking information and support related to Central Nervous System Vasculitis.

As part of our commitment to maintaining the privacy of people who sign up for and participate in our services and to those who simply visit our web site), CNSVFINC has developed this privacy statement. The statement has two purposes:

To educate you about privacy issues, and To inform you about the specific privacy policies of CNSVFINC. This Privacy Policy will tell you what information we collect, how it is used and what your choices are.

Information We Gather Our web servers automatically generate temporary logs that contain the following information: Internet address of the computer being used, web pages requested, referring web page, browser used, and date and time.

This data, which does not identify you as an individual, is used in aggregate to improve the content of the web site and is not ordinarily associated with specific individuals.

Names and Email Addresses You may be asked to provide personal information such as first name, state or country, gender, or e-mail address, if you choose to participate in certain of our support services.

Cookies "Cookies" are small computer files that a Web site can transfer to your computer. Currently, The CNSVFINC does not use cookies on its site, and use of CNSVFINC services does not require that you enable cookies.

Cookies are used to track web site use and, by some web sites, to remember information about preferences and pages you have visited. For example, when you visit some sites on the Web you might see a "Welcome Back" message. The first time you visited the site a cookie was probably set on your computer; when you return, the cookie is read again. You can refuse to accept cookies, disable cookies, and remove cookies from your hard drive.

Accuracy of Confidential Information CNSVFINC does its best to ensure that any personal information we have about you is accurate. Your participation in certain of our support services will result in your disclosure of some personal or private information about yourself. Please be aware that this will occur. Please understand that any information you disclose to a group becomes public information.

Please exercise caution when deciding to disclose your confidential information. We ask our members to be discrete about sharing the private information of others in settings outside of the services we provide. If you believe someone is not honoring your privacy, please try to resolve your concern with them. If you feel they still are not honoring your privacy, please let us know.

Whispering Angels Email Service - The Group One of the most popular services of CNSVFINC is our group email. On a daily basis, people with CNSV can exchange greetings, thoughts, experiences, troubles, support, and so forth. To participate, you must share an email address. Please be aware that, in the course of sharing experiences and supporting each other, personal information about you and your medical condition is certain to be revealed.

E-commerce There are no e-commerce transactions on the CNSVFINC web site. Our services are free. We do not collect credit card numbers or sell goods or services. For your convenience in understanding or coping with CNSV and its effects, we do offer links to products sold at Amazon.com. CNSVFINC receives a small payment only if you buy something from Amazon. We also sell products at CafePress.com. All proceeds benefit the Foundation.

Other Disclosure CNSVFINC uses the information we collect only to provide you with the services you have requested as described above. CNSVFINC will not disclose the personal information you provide on the site to any outside organization except when we have your permission or under special circumstances, such as when we feel it is necessary to protect our rights or the rights of others, or as required by law.

Links To Other Sites The CNSVFINC web site provides links to other sites that we believe may be of interest to you. Please be aware that this Privacy Policy applies only to the The CNSVFINC web site and does not apply to sites that we link to. We encourage you to read the privacy policies of other sites before providing them with any personal information.

Children's Privacy The Federal Trade Commission has issued special requirements protecting the collection and transfer of children's personal information on the Internet. CNSVFINC is committed to protecting the privacy of children and does not knowingly collect personal information from children under the age of 13.

Your Consent By using the The CNSVFINC web site and its services, you acknowledge your acceptance of this Privacy Policy. We may occasionally need to make changes to our Privacy Policy, to reflect changes in our site and address new issues, so please refer to this policy regularly.

Questions If you have questions about this privacy statement or if you are concerned about privacy in the availability of CNSVFINC services, please email us.

The Central Nervous System Vasculitis Foundation, Inc. does attempt to keep all material located here current and updated in a timely manner, however, in no way is any material here to be taken as replacement for that of your doctor or healthcare provider. Our web master can be reached at support@cnsvfinc.org